Hi! I've just turned 30 and been disabled for the last 2 years. I have a rare genetic disease and a brain tumour (amongst numerous other health problems). The disease is managable with medication but is unstable and can easily become life threatening. I'm often in hospital and mainly housebound because of physical weakness, black-outs, tiredness and immense pain. I used to be a teacher (head of philosophy) but can no longer work. My main passion in life was surfing (which I've had to give up) and I dream of going back to Hawaii someday! I'm not depressed about my condition (though I was the first few months after diagnosis!) and have now come to terms with the way my life is. I just wish I had other people to talk to who understand what it's like to be ill and not be able to do the things you love. If I go out, I can't stand for long, I don't have much energy and I'm still trying to figure out just how much is too much! My determination often gets me in to trouble by overdoing things!
I'm currently seeking advice/treatment from a specialist in the USA and I'm hopeful that he can improve my quality of life, but so far things are still the same.
I'd say I'm laid-back, easy going, friendly, quiet and kind. I try to see the good in everything and like the simple things in life. I'm really appreciative of what I have. Life has become so much more precious to me - you just never know what's round the corner.
I love the beach, and the outdoors in general... the usual things too - cinema, nice food, etc. I like trying new things and I'm teaching myself the guitar.
anything new/different
I like all sorts! I LOVE Jack Johnson and similar things (surfer type music) but also like dance, rock, pop, pretty much most things
Desperately Seeking Susan
Blue Crush
Riding Giants
Pulp Fiction
Back to the Future
Lost
24
Documentaries and docusoaps
Eddie Would Go
Feal the Fear and do it Anyway
The God Delusion
Eddie Aikau (Hawaiian surfer and first Hawaiian lifeguard)
