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Clegg
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Proteus Syndrome - 2007/06/21 21:04 Mandy Sellars has a Proteus Syndrome which is also very rare. I saw her on Jeremy Kyle a few months ago.

If you type her name into google she has her own web site.
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Scott_1984
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Re:Proteus Syndrome - 2007/10/18 03:54 Welcome To Ablehere

I have uploaded some more information on: Proteus Syndrome for other users.

Proteus Syndrome is a congenital disorder that causes skin overgrowth and atypical bone development, often accompanied by tumors on over half the body.

Proteus Syndrome is extremely rare. Since Dr. Michael Cohen identified it in 1979,[1] only a few more than 200 cases have been confirmed worldwide, with estimates that about 120 people are currently with the condition.[2] There may be many more than this, but those individuals correctly diagnosed usually have the most obvious manifestations of Proteus syndrome, leaving them severely disfigured.

http://en.wikipedia.org/wiki/Proteus_Syndrome

http://www.mandysellars.com

http://www.proteus-syndrome.org

http://www.emedicine.com/ped/topic1912.htm

http://www.proteus-syndrom.de

Post edited by: Scott_1984, at: 2007/10/18 03:54
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