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disheartened again lady
Written by 6YSASSY
hi all if u read my profile you will see that i was diagnosed with r+r ms 20 years ago and was awarded full rate mobility.this was great as it meant i could have a car to get out and about and maintain my independance.i had a review 4 months ago an independent so called doctor came to see me at home was really unpleasant and rude and left.may i say nothing has changed with my condition in fact is getting worse yet all myb specialists tell me conflicting stories why doesn't one in authority sit down one on one and explain what's going on??? result i am now housebound,have had to let people go who help me live as independent a life as possible.I vowed 20 years ago that i would not let any disabled person be treated like this and now it's hapenning to me there does not seem a ****n thing we can do.governments and ablebodied people can ' accept' disability as long as we stay under their feet and allow them to pity us, and feel ahhhhhh thank god it's not me???? how stupid is that????? sorry guys i am just venting my frustrations!!! but I know I am not alone??? if u r in same position please write to me 6YSASSY CHEERS N TAKE CARE
Views: 1262

  Comments (2)
Written by ducky, on 26-09-2008 18:45
can you appeal against it
Written by Posh, on 03-10-2008 07:01
Go ahead and vent, that's what we're here for! We all get frustrated with our lives, and we come to the Forums here for support and friendship. 
First off, if you feel your MS is worse, APPEAL, APPEAL, keep appealing until you get what you need. 
Are you a member of the MS society? They can help too, you are not alone! They can help explain what to expect with Relapsing Remissive MS. 
Get onto your OT, get adaptions for your home, get on to the GP, get his help too. We only get out of life what we are willing to put in in effort. If you need help, don't be proud, ask for it, and then keep fighting til you get it! 
 
Best of luck, and remember we're here to help also, come and see us in the Forums! We laugh and joke with each other, mostly as a release from our frustrations! 
And Best of luck, don't feel sorry for yourself please, there is always someone in this world worse off than you! (Not many possibly, but there are some! :) ) 
Posh xx

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