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TOPIC: Hypermobility/Hypermobility Syndrome Chat:

Hypermobility/Hypermobility Syndrome Chat: 12 years 3 weeks ago #1333

Hypermobility/Hypermobility Syndrome Chat:

Does anyone else suffer from any form of: Hypermobility/Hypermobility Syndrome, if so tell all the Ablehere users your story & if it even effects your normal day to day activities or mental health.

If your not sure what: Hypermobility/Hypermobility Syndrome is, then go to: www.ablehere.com/component/option,com_jo...iew/id,1222/catid,47 & www.hypermobility.org/whatishms.php

Here are some people on Youtube with: Hypermobility/Hypermobility Syndrome:
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Maybe you do suffer from: Hypermobility/Hypermobility Syndrome & it effects your every normal day to day activities & mental health.

Does your: Hypermobility/Hypermobility Syndrome causes any problems, pain, discomfort, disability?:

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #15873

Hi Scotty I the only one on here so far I think who has it n I posted all the info n symptoms on the other disabilities section, plus the disabilities i suffer because of it and its very late diagnosis. hope the info is of use to you, I have full joint hyper mobility syndrome, affecting, wrists, ankles, knees, shoulders fingers and toes. most have been injured or dislocated some more often than others.

Anything else u need just ask.

I think I'm the first sufferer on this site, when I mentioned it in the rant room I was asked to put an explanation and description on the disabilities pages.

anything else just ask.

Kitty, :)

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #15876

Hi Kitty :)

I think you are The First Hyper Mobility Suffer,

But as you already probably know some Doctors, Consultants, Hospitals, Physiotherapist,

Would say you only need to score 0 (Zero) & You've Got Hyper Mobility & That means all of us, LOL :)

Where as Other Doctors, Consultants, Hospitals, Physiotherapist, Say You Can Only Have Hyper Mobility Syndrome, If You Score 3 (Three) Or More.

I hope more people will join you in this chat/debate post, & check the links I have posted :)

Me, Julie, & Bombadil, All Suffer From Mid Carpal Instability (MCI)/Palmar Midcarpal Instability (PMCI),

& Are aware of Pain, Discomfort, Clunking, Snapping, Clicking, Popping, Wrist/Hand or Wrists/Hands,

I use gadets like tin openers, I can't imagen having instability in more than My Left Wrist.

:) *EXTRA BIG HUGS* :)

What Is Hypermobility/Hypermobility Syndrome?: www.ablehere.com/component/option,com_jo...iew/id,1222/catid,47

Here are just some of Kitty's Posts/Threads Or Replies @ www.ablehere.com/component/option,com_jo...ew/id,15746/catid,56

www.ablehere.com/component/option,com_jo...ew/id,15798/catid,47 <br><br>Post edited by: Scott_1984, at: 2009/01/06 02:20

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #15948

The Beighton Score @ tinyurl.com/3k97ak

Beighton Score

The Beighton modification of the Carter & Wilkinson scoring system has been used for many years as an indicator of widesparead hypermobility.

A high Beighton score by itself does not mean that an individual has HMS.

It simply means that the individual has widespread hypermobility.

Diagnosis of Hypermobility Syndrome or HMS should be made using the Brighton Criteria.

The Beighton score is calculated as follows @ tinyurl.com/3k97ak

& The Beighton Score - The New Diagnostic Criteria for HMS @ tinyurl.com/6u7ke3

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #15965

Hypermobility Syndrome - Recognition and Management for Physiotherapists

tinyurl.com/hypermobility-syndrome

(book)

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #15966

bombadil wrote:

Hypermobility Syndrome - Recognition and Management for Physiotherapists

tinyurl.com/hypermobility-syndrome

(book)


That link is very helpful for people on here to see what Hyper Mobility Snydrome (HMS) is.

I can't bend any of my joints like they can & I am also guessing you can't do that either, Ryan???...

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #15967

Again I Score 0 (Zero) On The Beighton Score For Hypermobility Syndrome.

& I believe you also to Ryan Score 0 (Zero) on the test?.

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #16015

Yes i score 0, even on the wrists.

i dont think i have it

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #16016

bombadil wrote:

Yes i score 0, even on the wrists.

i dont think i have it


Ryan I also do not think you have Hyper Mobility Snydrome (HMS),

As you've scored 0 (Zero) & never had any other Strains, Sprains, through light tasks or injuries.

My Ex-Employers Marks and Spencer Plc's Medico-Legal Expert - Mr. James Campbell Semple - Consultant Orthopeadic & Trauma Hand & Upper-Limb Surgeon said I had Hyper Mobility Snydrome (HMS) & other diseases & He stated they was nothing wrong with my left hand/wrist at all, in 2006.

Despite 2 NHS Consultant Orthopeadic & Trauma Hand & Upper-Limb Surgeon's confirming I was suffering From Mid Carpal Instability in my left hand/wrist only & it was an Complex & Serious Wrist Disability that would cause Pain, Discomfort, & Disability, As well as getting worse over time, This was also confirmed by my own Private Medico-Legal Expert Consultant Orthopeadic & Trauma Hand & Upper-Limb Surgeon,

& It was also confirmed I was suffering From Mid Carpal Instability in my left hand/wrist only & it was an Complex & Serious Wrist Disability, By 2 Physiotherapists one from The NHS & 1 from My Ex-Employers Marks and Spencer Plc, Along with Other NHS Doctors, Nurses, & Consultants, & over the years even Plain X-rays have now shown clear Instability Patterns,

I was suffering From Mid Carpal Instability in my left hand/wrist only & it was an Complex & Serious Wrist Disability, By 4 Independent Industrial Injuries Disablement Benefit Doctors, & Unanimous found a Disabled Person Under The Uk Disability Discrimination Act (DDA) of 1995, In My Tribunal Hearing in 2005, The Chairman was an D.D.A. Barrister (I believe) & the other 2 members no idea what area they worked in.<br><br>Post edited by: Scott_1984, at: 2009/01/10 09:31

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #16022

hi scot n ryan don't mean to jump in on ur chat however if u ckeck the updated beighton checks now its actually can you now or could u ever bend like that, the joints do start to tighten up with age, u may still have it but ur joints may have tightened up, it depends on history as well. just thought should mention it.

all the best Kitty.

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #16024

Hiya Kitty & thanks for your input :)

I've never been able to bend that way in the past either, & I was including my 0 (Zero) Score to include as from baby to now :)

I can't speak for Ryan, But I am sure He will also update us, hehe ;) :)

Everyone Welcome to chat :)

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Re:Hypermobility/Hypermobility Syndrome Chat: 10 years 10 months ago #16077

Hi Kitty,

I am 23 years old and cant remember being able to do any of them earlier in my life either.

and in the case of touching my toes , i can barely reach past my shins :laugh: which really sucks when trying to do yoga i will tell you

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