Need support: hypermobility and carpal instability

Hi Scott

I am afraid I haven't heard anything from Mick. I do hope he is ok. Please let me know if you do hear from him.

Julie

Julie wrote:

Hi Scott

I am afraid I haven't heard anything from Mick. I do hope he is ok. Please let me know if you do hear from him.

Julie

Thanks Julie

Well hopefully his ok or just not got internet as present.

I'll keep everyone updated

I've made a post at: www.ablehere.com/component/option,com_jo...ew/id,16162/catid,22

Hi again everyone,

Got back from seeing another doctor at a clinic today. I went to see if i could get a referral to the orthopaedic doctor I want to see.

The clinic doctor told me that the doctor i want to see is no longer accepting referrals or patients...

I told this doctor that i think i have carpal instability, and he said \"well the x-rays don't show anything\". I told him about dynamic carpal instability and how it does not show up on x-rays at first, and that physical examination and arthroscopy are the only ways to diagnose it.

He said that \"no one\" is going to do arthroscopy on me, because the waiting list is too long... what the hell?

This doctor ordered more blood tests, this time to see if I have arthritis. He also said that he doesn't think I have joint hypermobility, and i think he is right.

I am not sure what to do now. I guess go looking for another doctor?

in peace &amp; love ~<br><br>Post edited by: bombadil, at: 2009/01/27 20:59

bombadil wrote:

Well today I got some really bad news and am completely stressed out.

Workers compensation will not cover me at all because the x-rays don't show anything.

I saw my doctor again today and he told me that he agrees my condition was pre-existing (hypermobility) and that it was just temporarily aggravated by the repetitive typing at my job. He says he can't find any objective evidence that my condition is permanently worse.

For some reason now he is saying I don't have carpal instability, just hypermobility.

I am so angry right now and scared and upset.

There is no way I can go back to typing 110 words per minute for 30 hours a week. Just slowly typing this post is hurting my wrists.

Basically all I can do now is look for some minimum wage job, and one that doesn't involve repetitive movements like a cashier or something.

All of my training and skill sets revolve around computer use.

It pisses me off because clearly something is worse, something is different in my wrists than before. ARG

Hiya,
Ryan,
Sorry to hear about your more bad news, I feel The Hospitals are taking The Piss.

I am glad this Doctor/Consultant doesn't think you have hyper mobility syndrome (HMS),

But sending away for Arthritis Blood Tests so soon after you've noticed signs of Dynamic Carpal Instability, Its very unlikely to have any signs of Arthritis or Osteoarthritis at this early stage, But Julie developed Arthritis before me &amp; I've been suffering from The Clunking, Snapping, Clicking, Popping, after the accident/injury to my left hand/wrist on: 13-10-2002,

You can ask you Doctor for this though, As it wouldn't be up to him or you decide weather you can have Wrist Arthroscopy, As any Consultant Orthopeadic &amp; Trauma Hand &amp; Upper-Limb Surgeon, Would need to do this after the following standard tests:

Physical Hand &amp; Wrist Examinations - www.maitrise-orthop.com/viewPage_us.do?id=153 & www.maitrise-orthop.com/corpusmaitri/ort...3_saffar/index.shtml & emedicine.medscape.com/article/1241610-overview & emedicine.medscape.com/article/1241610-overview

Midcarpal shift - To test for midcarpal instability on the right wrist, the examiner stabilizes the patient's forearm, with the left hand in a pronated position. With the patient's wrist in 15° of ulnar deviation, the examiner's right thumb exerts volarward pressure at the level of the distal capitate. The wrist is then simultaneously axially loaded at the metacarpals and ulnarly deviated. The result is positive if a painful clunk occurs that reproduces the patient's symptoms.

Special Test &amp; Stress Plan X-Rays - www.maitrise-orthop.com/corpusmaitri/ort...3_saffar/index.shtml & wristinstability.multiply.com/journal/item/14 & www.radiologyassistant.nl/en/42a29ec06b9e8 & www.wheelessonline.com/ortho/mid_carpal_instability

Videofluoroscopy &amp; Ultrasonography &amp; Arthrography &amp; Computed tomography &amp; Magnetic resonance imaging, with and without Arthrography &amp; Wrist Arthroscopy

Read This Website: emedicine.medscape.com/article/1245322-overview

An Consultant Orthopeadic &amp; Trauma Hand &amp; Upper-Limb Surgeon, Will often not need to do all the above tests, I've only had Physical Wrist &amp; Hand Examinations, 2 MRI Scans, Stress/Special Plan X-rays, &amp; on old Videofluoroscopy, &amp; Wrist Arthroscopy.

I hope this will help, I'll post this on Ablehere.Com too.

Wish You All The Best, Don't be ignored.

Keep Your Chin Up

Take Care &amp; Take It Easy

Scott &amp; Jon

Hello Ryan

So sorry to hear your bad news, it seems you are being blocked at every turn.
My advice would definately be DON'T GIVE UP.
Get another doctors name and a referral and keep going until you get a doctor who understands and can really help you.
It took me ~2 years to get a proper diagnosis, from my 3rd doctor.
I did have arthritis and a joint replacement for it before I was diagnosed MCI. Therefore, even if your tests for arthritis do come back positive it doesn't help with your diagnosis of MCI - you can have MCI with or without arthritis. The arthritis can be a symptom of MCI or there independently and it's important to know which to get the correct treatment.
You really do need a doctor to carry out the proper tests. I can't believe you have been told you can't have an arthroscopy just for the reason of a long waiting list. I don't know what your health service is like in Canada but in England you can not give a reason like that.
I wish there was more I could say to help but I do know what it's like living like this - constant pain and inability to perform simple manual tasks and not being able to work at what you love and have trained for. Just ~4 years ago I had no problems and was enjoying my life and my work and now everything is so much more difficult. It is really hard to reevaluate your life but take time, get advice and lean on friends and family if you can.
Good luck. My thoughts are with you.
Julie

Well Said Julie

Hello Julie &amp; Ryan

Hope your both ok

I've finally got a copy of Mr. Darwish's letter to My G.P., But not the one sent to Miss. Ang.

My G.P. has carried out Miss. Ang's request letter dated: 24-12-2008, Where she asked him to refer me to a Pain Clinic &amp; He sent this letter out on: 27-01-2009 &amp; I'd be going to tinyurl.com/PainClinic If I get on there waiting list,

Or if Miss. Ang manages to contact Mr. McCarthy who is away on sabbatical for 6 months &amp; not left clear guidlines what should happen to my MCI/PMCI if the Arthroscopic thermal capsulorrhaphy for palmar midcarpal instability/Thermal Capsulorrhaphy for Midcarpal Instability Operation was unsuccessful from: 24-07-2008,

&amp; I've had to write to My own Local Labour MP - Mrs. Meg Hillier &amp; ask why My Ex-Employers Marks And Spencer Plc's Chosen Private &amp; Retired Medical Expert - Mr. James Campbell Semple - Consultant Orthopeadic Hand &amp; Upper-Limb Surgeon &amp; Legal Team have been able to effect my limited or full wrist fusion, Which would stop The Clunking, Snapping, Clicking, &amp; Popping, From My Left Hand/Wrist, &amp; Arm,

&amp; Thus hopefully reduce alot of Pain &amp; Discomfort &amp; hopefuuly increas strength/power in the hand/wrist &amp; the maybe followed by Pain Managerment &amp; More Physiotherapy, s long as I've had a limited or full wrist fusion.

I am full aware that no MCI/PMCI will ever be 100% Pain Free or 100% Disability Free, Wrist operations only delay the worsening of the Wrist Disability &amp; to delay Osteoarthritis.

I've been doing twice a day Physiotherapy &amp; Hand, Wrist, &amp; Finger, Strengthening Excerises since: 13-10-2002 - Present, Painkillers (8 Tylex &amp; Other PAinkillers A Day), Hot &amp; Cold Therapy, &amp; Counselling,

Which are all bloody forms of Pain Managerment

Studies by Mr. David M Lichtman - Consultant Orthopeadic Hand &amp; Upper-Limb Surgeon, The Worlds Leading Expert In Mid Carpal Instability (MCI)/Palmar Midcarpal Instability (PMCI) do much better with a limited or full wrist fusion &amp; Pain Managerment,

Than those with Ligament Tightening Wrist Operatons or Pain Managerment on its own,

As MCI/PMCI is a Structural Problem &amp; needs surgery to correct it.

wristinstability.multiply.com/journal

BLOODY My Ex-Employers Marks And Spencer Plc's Chosen Private &amp; Retired Medical Expert - Mr. James Campbell Semple - Consultant Orthopeadic Hand &amp; Upper-Limb Surgeon &amp; Legal Team.

You guys are so awesome, thanks Scott &amp; Julie.

Your words of encouragement and support mean a LOT to me.

I decided that I am not going to give up.

Workers compensation got back to me the other day and they are now saying (according to the professional medical opinion of their own doctor, who has never once seen me in person) that I have carpal instability which was pre-existing before my injury at my job.

They say I suffered a \&quot;sprain\&quot; and that I'm healed of the sprain now, and that I have pre-existing carpal instability which is \&quot;delaying my recovery\&quot;.

The really weird thing is that they consider wrist hypermobility and carpal instability to be the same things... when even the doctor who diagnosed it as hypermobility said it is not the same.

And the really weird thing is that the doctor I am seeing now does not even agree that I have wrist hypermobility AT ALL.

It is such a strange and broken system, and it can be really frustrating...

My current strategy is to follow up with the doctor I am seeing now in a few days, and ask him to please refer me to a hand and upper limb orthopaedic doctor. As well I am going to be printing some pages from medical journals which show how carpal instability cannot generally be detected by x-rays especially in the early stages.

Thanks again for all of your replies, I have faith that everything will work out for the best in its own time.

Truth is Truth and it eventually comes to the surface.

Love &amp; Blessings
bombadil

Also yesterday I went to the physiotherapy clinic where I was first treated.

I asked them for a copy of the diagnosis that the physiotherapist wrote saying that she found I have carpal instability after doing physical examinations.

They provided me with a copy (which I am also going to show to my new doctor).

The diagnosis she wrote is dated Feb. 26th 2008! So it's been almost a year.

This is the same note that she told me to give to my first doctor, and he threw it in the trash. I'm really glad they kept a copy in my file.

Hiya Ryan

Glad you've managed to get a copy of your Physiotherapist letter

Me &amp; Julie know what you are going through &amp; how most Consultants know little about MCI/PMCI &amp; remember they've only been mainly learning since Lichtman's Papers &amp; Research in 1981 - wristinstability.multiply.com/journal/item/9 & wristinstability.multiply.com/journal/item/10 & wristinstability.multiply.com/journal/item/15

Sadly its not been drilled into Doctors/Consultants heads yet that Wrist Instability starts off as Dynamic Wrist Instability &amp; needs Physical Wrist Examinations &amp; Special Tests - wristinstability.multiply.com/journal/item/39 & wristinstability.multiply.com/journal/item/40 & wristinstability.multiply.com/journal/item/14 & wristinstability.multiply.com/journal/item/3

All Mid Carpal Instability Websites &amp; Meidcal Journals I've been able to uplaod at: wristinstability.multiply.com/journal

Ryan,

I wish you all the best of luck

Stay strong &amp; understand alot of MCI/PMCI Suffers are passed from Doctor, Conultant, Hospitals, For Weeks, Months, Or even years

Remember I didn't even get to see Mr. McCarthy until: 28-02-2003, Despite the orginal accident/injury to my left hand/wrist took place on: 13-10-2002,

So that was 4 months later.

Also remember Mr. McCarthy knew I had MCI/PMCI on: 28-02-2003 but he didn't offically tell me or give me a letter for My Ex-Employers Marks And Spencer Plc,

Until He carried out the Diagnostic Wrist Arthroscopy on: 29-10-2003 &amp; I weren't told until: 17-11-2003 or got any letters,

Yet My Medical Records show He confirmed MCI/PMCI on: 28-02-2003 to a letter he sent to his colleage.

Hello again everyone, just dropping by to give an update.

The doctor I saw a few months ago, who I asked to refer me to the orthopaedic hand and upper limb surgeon, did send a referral. Around that time I also emailed the orthopaedic hand and upper limb surgeon and asked him to please see me or to recommend someone else who would be able to diagnose me in the city.

I got an appointment with the orthopaedic hand and upper limb surgeon, and I saw him 2 days ago (on Monday).

He did a physical examination of my wrists and immediately diagnosed my condition as midcarpal instability ! He told me that I have always had midcarpal instability (was born with it) but he believes that the injury at my job made it permanently worse (enhanced it).

It was the most positive experience I have had yet with a doctor concerning my injury. He took the time to listen to me and he understood exactly what was going on with my wrists.

He also said that he will help me appeal the worker's compensation board's decision to suspend my benefits. Yesterday I contacted a worker advisor and started the process.

I am relieved on so many levels, to have finally found a competent doctor (orthopaedic hand and upper limb surgeon) that has taken the time to listen to me and properly diagnose my condition.

Unfortunately he said there is not much that can be done except for continuing with wrist and hand exercises. A physiotherapist was present while he did the examination and afterwards she went over some exercise techniques with me.

Today my wrists hurt quite a bit due to the examination... and I am wearing some wrist supports. I am going to go get some new better wrist supports with a metal plate support in them, as the ones I have currently are just made of fabric.

Here are two documents about midcarpal instablity I found today:

Midcarpal Instability

&amp;

Midcarpal Instability - Intrinsic to Carpus (page 22)

Hope everyone is well ~
bombadil

Post edited by: bombadil, at: 2009/06/10 08:14<br><br>Post edited by: bombadil, at: 2009/06/10 08:15

Hiya Ryan

CONGRATULATIONS

I've always know You've had Mid Carpal Instability (MCI)/Palmar Midcarpal Instability (PMCI)

&amp;

I was always of the view it could have always been there, &amp; If you hadn't suffered an injury through work, By over working both your wrists, Then The MCI/PMCI may have never come to light &amp; the instability would have never come through or happend &amp; you wouldn't have known &amp; therefore be living a normal Pain Free &amp; Wrist Instability Life Now!.

\&quot;My Consultant Orthopeadic &amp; Trauma Hand &amp; Upper-Limb Surgeon, Mr. Donal Martin McCarthy Has Always Been OF The View I've Always Had MCI/PMCI Inside My Hands/Wrists, But If It Wasn't For The Accident/Injury To My Left Hand/Wrist Wouldn't Have Brought It To Light,

But When He &amp; Colleagues Were Unable To Physically Find An Abnormal Movements, Instability, Clunking, Snapping, Popping, Clicking, Through Physical Examinations Of My Right Fingers, Hand, Wrist, Arm Shoulder, Right Side Of Neck,

&amp;

Nor When They Carried Out All Physical Instability Examinations &amp; Tests On My Right Hand/Wrist, Mr. McCarthy &amp; NHS Colleagues Had To Come To The Conclusion That, If It Was Not For Me To Suffering The Accident/Injury To My Left Hand/Wrist On: 13-10-2002, I Would Have Not Suffered From MCI/PMCI In My Left Hand/Wrist &amp; Therefore I Had No Hidden &amp;/Or Underlying MCI/PMCI In Either Of My Hands/Wrists,

&amp; If It Wasn't For The Accident/Injury In My Left Hand/Wrist, No MCI/PMCI Would Have Been Caused By The Accident/Injury, Nor Been Present Before: 13-10-2002.

\&quot;SORRY I AM RAMBLING AGAIN\&quot;