If there is anyone out there with Spina Bifida/Hydrocephalus, maybe you would like to share your life experiences with others or find out more about Spina Bifida then I can point you in the right direction, also you can talk to me if you have been discriminated against because of your disability.
Spina bifida (Latin: \"split spine\") is a developmental birth defect involving the neural tube: incomplete closure of the embryonic neural tube results in an incompletely formed spinal cord.
In addition, the bones of the spine (vertebrae) overlying the open portion of the spinal cord do not fully form and remain unfused and open.
This allows the abnormal portion of the spinal cord to protrude through the opening in the bones.
There may or may not be a fluid filled sac surrounding the open spinal cord. Other neural tube defects include anencephaly, a condition in which the portion of the neural tube which will become the cerebrum (front of the brain) does not close, and encephalocele, which results when other parts of the brain remain unfused.
Spina bifida malformations fall into three categories: spina bifida occulta, spina bifida cystica (myelomeningocele), and meningocele.
The most common location of the malformations is the lumbar and sacral areas of the spinal cord.
Myelomeningocele is the most significant form and is that which leads to disability in most affected individuals.
The terms spina bifida and myelomeningocele are usually used interchangeably.
Spina bifida can be surgically closed after birth, but this does not restore normal function to the affected part of the spinal cord and an individual with this condition will have dysfunction of the spinal cord and associated nerves from the point of the open defect and below.
Intrauterine surgery for spina bifida has also been performed and the safety and efficacy of this procedure is currently being investigated with an NICHD-funded grant.
The incidence of spina bifida can be decreased up to 70% when daily folic acid supplements are taken prior to conception.
Spina bifida means 'split spine'. There are 33 vertebrae in the spine - if one or more of these don't form properly in early pregnancy, the nerves in the spine may be unprotected, leading to damage of the central nervous system.
This damage may cause mobility difficulties, bladder and bowel problems and, in more severe cases, paralysis below the affected part of the spine.
Disruption of the nervous system depends on how high up the spine the problem lies and how well the spinal cord below the defect works.
Hi Christie I have Spina Bifida I am able to walk but it has got worse as ive got older im now 52 and finding things very hard physically... Ive led my life as a "normal person" or so i thought but it cost me 2 marriages...Because it didnt matter how hard i tried to be "normal" hospitals and just being me was far bigger than either marriage. Ive always been independent and i still am...(man or no man) Its only now at my age I can look back and wish there was things like this for me then..i felt so alone like nobody understood and i was trying so hard to fit in with everything normal taht wasnt normal in my life...coping with things that came with spina bifida ..like incontinence etc how do you explain that when your a teenager?? well you learn to hide it make excuses etc Im still making excuses...lol
Hi Daisy, It's amazing how times have changed and when you look back and see how any disability was seen and how people where treated who had disabilities now they would be expelled from schools or adults would get a police warning. And the internet has helped people find places like this site where they can meet people with the same or different disabilities and make new friends or just chat or get advice. The world has moved on and it will be interesting to see what's ahead in the future!! Welcome to the site!!