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Anyone suffer with extreme muscle spasms (aka 'Charley Horses')? & anyone suffer leg cramp when leaving their wheelchair

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9 years 1 month ago #65066 by Amanda2
I was sorry to read that you suffer migraines too...and to last more than 2 days, that's dreadful, no wonder you feel so drained, I imagine you've asked your Dr about them? Sorry too to read about the spasms and I think you're right, our bodies certainly know when we're at a low ebb from another condition and seem to choose their moment ... I suppose sometimes we're not good at multi tasking in that our bodies are trying to deal with condition 1) so only gives scant attention to condition 2). I think you're taking the right approach in learning about your conditions: sometimes it can help a great deal. In some ways no one is going to be as expert (not even a Consultant) in your own conditions as you yourself are because we all react a little differently to the same condition. I hope you're feeling better soon. Take care.

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9 years 1 month ago #65070 by Joelyb65
I've suffered from severe muscle spasms in my calves since I was 16 yo (I'm now 51) and in recent years I've been having spasms in my chest, stomach and back, I barely have to move to cause them and it is extremely painful!
When I was hospitalized in 2015, I mentioned it to my new Doctor and he said it's due to a deficiency of Magnesium, and for the week I was there, he had me pumped full of Magnesium tablets!
After that, I was fine for a long time, but recently I've had trouble again so I'm going to buy some Magnesium tablets and get it back into me!
It would be worth your while giving them a go and seeing what happens?
You need to take several tabs a day to really get it into your system!

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9 years 1 month ago - 9 years 1 month ago #65074 by Amanda2
Thanks a lot for your post. I was sorry to see that you get these extreme muscle spasms too. They are dreadful aren't they? I did used to take Magnesium until I started on antibiotics (a year ago today strangely enough) for my urine infection. I read that things like minerals can block the absorption of antibiotics so I then decided not to risk taking any for the time being. My cramps have certainly become worse since I came off the Magnesium and as I'm currently off antibiotics your post has inspired me to start taking Magnesium again and hopefully I'll be able to stay on it this time! Thanks for the tip that it needs to get into your system.
Last edit: 9 years 1 month ago by Amanda2.

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9 years 1 month ago #65081 by Joelyb65
No worries Amanda, glad to help, I know exactly how painful and debilitating those spasms can be!
I was recently in the car with my Dad and I was thrashing around having spasms and being strapped in didn't help, it made glad me I don't drive!?

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9 years 1 month ago #65082 by BUBBADOG14
Joely my friend thank you for posting about magnesium tablets I'm going to check with my G.P if I'm okay to try them and see how I get on, will let you both know if I get cleared to take them.

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9 years 1 month ago #65091 by Amanda2
Joely, your spasms sound really dreadful. I do sympathise.

In the end I cancelled my Dr appointment for today because it was primarily for my UTI and at the moment it's (unusually) behaving itself so I will see her next week instead. I think even if the UTI continues to behave itself next week I will still see her about the muscle spasms ... I need to get to bed to control the amount of lymph fluid in my legs (it tends to disperse when I'm in bed) so dreading the muscle spasms (which occur when in bed) is no way to live! I'll report back on what my Dr had to say about the spasms anyway.

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9 years 1 month ago #65092 by Joelyb65
Yes, good idea to double check with your Doctor, my advice is just based on my own experience!? I hope all goes well for you!Take care!

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9 years 1 month ago #65095 by BUBBADOG14
I know what you mean it's no way to live but it's our life's now so we have to find a way to live with it. I find if I'm in bed resting (most afternoon's!!) I find watching t.v keeps my mind off my health, I record programmes or films on my Sky box to watch. Or if I'm downstairs I listen to music while on my laptop (as now) to keep my mind off pain & spasms. Also if I want to cheer myself up I watch Prince Concerts on Utube on telly which does get me boogying on the settee!! Or I read!!

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9 years 1 month ago #65114 by Amanda2
Thank you both for your posts and good wishes. I agree that it's best to keep yourself distracted. I find that YouTube is a good source of entertainment, primarily music. I also suffer from (as yet undiagnosed) Restless Leg Syndrome and again: often get this whilst in bed, whilst it's not painful as such: it's incredibly irritating ... like an itch you can't scratch!... so again: having the TV on helps distract a bit... in fact I find that the TV helps me doze off to sleep!

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9 years 1 month ago #65115 by Joelyb65
Yet again I can relate, I used to suffer from restless leg syndrome a lot when I was younger (I have a vague memory of taking medication for it?) and my partner (now ex partner) was always complaining about me kicking him in my sleep!
It still happens occasionally, and I feel more guilty about disturbing my cats than I ever did about disturbing my ex!?
Maybe it's because THEY don't hog the bed, steal the blankets and drool on MY pillow!?
Oh it's SO nice to be single!
Anyway, good luck with it all Amanda, feel free to send me a private msg if you ever feel like a chat or just to have a good whinge about things!?
I'm very good at listening and whingeing!
Joel

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9 years 1 month ago #65118 by BUBBADOG14
As I've posted before my Husband suffers with restless leg syndrome and used to kick me in the legs and I would wake up with bruises down my legs and it was like he was playing football in his sleep! Our main concern was with me having Osteoporosis he would cause me to brake a bone in my leg so I was banished to another room. Thinking about what with me having Epilepsy as well (And we both snore!) it was a good idea! So I sleep in my own room which I decked out how I like it!

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9 years 1 month ago #65140 by Amanda2
Thank you both for your posts and I really sympathise with anyone who suffers from Restless Leg Syndrome, particularly as it seems to be one of these conditions on which little is known. As you say, when you have Osteoporosis you would be concerned about being kicked... it would keep me awake! I too have my own double bed to myself. It's a wonder my hubby doesn't wake the whole street when he snores! ... and now I have these other difficulties (muscle spasms, RLS etc.) I think it's best for both of us! When we had cats ... if one of them was poorly I would have that cat sleep on my bed, it was reassuring to just have to wake, turn the lamp on and confirm that our cat was doing OK. I don't know much about epilepsy, does it just occur randomly? You do have a lot to endure, my sympathies.

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